New data now available in UPDB
The Resource for Genetic and Epidemiologic Research (RGE) governs access to certain data and research resources provided to the University of Utah for use in biomedical research. One set of data, the Utah Population Database (UPDB), includes family history records, vital records, cancer registry records, driver license records, and others. These records are linked together to form multi-generational pedigrees as well as longitudinal person-level data. Another set of data includes specimens and family and medical data from individuals enrolled in the High Risk Cancer Clinics (HRCC) at the Huntsman Cancer Institute at the University of Utah.
Access to these research resources requires review and approval by the RGE Review Committee and by an Institutional Review Board. A feasibility review and approval is required for access to High Risk Cancer Clinic data/specimens. All access is project-specific and must be renewed annually. Personnel on approved projects must sign notarized Confidentiality Agreements prior to use of any data.
Potential applicants should read the Information for Investigators and consult with staff regarding project requirements prior to completing an application for access. Questions about data and project design should be directed to Dr. Geraldine Mineau, Director, Pedigree and Population Resource, Huntsman Cancer Institute, University of Utah. Questions about availability of HRCC resources should be directed to Nancy Conrow, Manager, High Risk Cancer Clinics. Questions about policy and access should be directed to Jahn Barlow, Director, RGE.